If you don't know, Dalton has eczema and allergies to milk (casein and whey), soy, wheat, egg, and possibly peanuts (haven't been brave enough to try yet!). I think I've got them all! It's been a very frustrating and helpless process. After I had to stop breastfeeding when my cancer showed up (He was about 8 months) we found out he was allergic to milk after he would violently throw up every formula. I froze a good amount of breast milk, but it was also making him breakout. That's when we started seeing our allergist and started the long process of figuring out a method to contain the monster that is eczema. There are too many details to tell you here, but at this point he is doing rather well. Praise the Lord for this! Once he got off bottles, his face got dramatically better-around 13-14 months. More testing also revealed he was slightly allergic to almond and wheat, so I switched to coconut milk and stopped giving him wheat. It has helped a lot!
We switched to a pediatric dermatologist at Vanderbilt that took us 5 months to get into to see. He was nice and told me a couple of new tips, but overall it was not the magic pill I was hoping to get. I realize most of the work will be us (this I already knew, but was hoping for an advocate to give us more). It's basically detective work and this I do as a nurse. I'm familiar with it, but as a mom, it's very different. Emotions get in the way because you are the one up with him at night, you are the one seeing his poor scratched, red body. This is hard to see as a mommy.
God has been gracious. Sure, I get frustrated when I can't think of anything else to give my son when he's had chicken sausage 7 days in a row when all I want to make him is a good ol' pb and j. BUT he has relief. He is happy. He sleeps well and doesn't cry from pain. We are off a low dose antibiotic and have a handle on his cold sores. This is an answer to prayers.
Meanwhile, I realized Dalton's sweet allergist is the guy I want him to see. Maybe he doesn't have 5 assistants/residents/nurses, but he remembers Dalton's name and says things like "He just made my Monday". We haven't had to go back to the doctor yet (which is a miracle!) so I guess I'll see what decision we make.
All the docs say about 80% of kids grow out of eczema by age 9 and they want us to start trying his allergies after he turns 2. This is promising. I also realize Dalton is very blessed not to have an anaphylactic reaction (throat closing up, can't breathe). Most of eczema goes hand in hand with asthma, but we will just take it one step at a time. That has been my mantra for eczema. And when others tell me he's itching or there's a red spot for the hundredth time or a special cure... I just take a deep breath, ask God for patience, and hear them out.
I remember posting a blog at a point right in the middle of my chemo treatment where Dalton was having a specially hard time. I was very exhausted and at the end of my rope. I have to say God is good. He answers our calls and has mercy on us. Thankful today.
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| 1 Year ago from yesterday. A beautiful, but red face. |
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| Today, a beautiful clear face. |












